Sharisa Kochmeister on her College Graduation Day credit Facebook |
Sharisa used to blog at My Surreal Life. This is how she describes herself there:
"I'm 31 now, have autism, cerebral palsy, epilepsy, dyspraxia and a genius IQ; and communicate almost entirely via keyboards. I am former President of Autcom, on the Panel of Advisors on the Spectrum for the Autism Society of America; publisher and managing editor in chief and writer for "The Voices and Choices of Autism" and so on, and etc. I am also a university graduate with a dual degree in Sociology & Psychology with honors and awards; a consultant, an advocate, and a FABULOUS FRIEND! ;-)"
The tragic story of how Sharisa disappeared and is now a prisoner of Jefferson County is succinctly stated in the Denver Post Op-Ed: Meyer: An outrageous human services case in Jefferson County
Sharisa Joy Kochmeister credit Facebook |
The following violations of Sharisa's rights under Olmstead and ADA took place:
Sharisa typing on her speech device credit Facebook |
2. She was removed to a nursing home for seniors with dementia, an inappropriate placement for her disability and a violation of the Olmstead Decision
3. Jefferson County Adult Services tested her intelligence without her speech support, therefore their finding of her IQ to be 47 is not valid as there is ample documented and video evidence to support she is an independent typer and a college graduate.
4. Jefferson County cannot simply seize control of a person competent to self advocate after blocking the disabled person's ability to communicate without that person's consent regardless of degree of disability.
4. Jefferson County is keeping Sharisa isolated not only from the supposed 'harmful' parents but also from everyone including advocates wishing to do wellness checks on her condition and her own doctor. This is not okay and is a red flag that Sharisa needs her own legal representation not a court appointed advocate that presumes she is incompetent and therefore erase her from the defense of her own right to self advocacy and self determination. Seclusion of disabled people is against the law and a violation of basic human rights.
When did we cease to live in a democracy? When did those agencies whose purpose is to protect become jailers and secret police, denying even a disabled adult's own medical professionals the right to insure their safety in this new setting? Who will be next? Because no matter how much wealth we have, no matter what power we think we wield, this can happen to any of our nonspeaking adult offspring at any stage of their lives and we their parents are powerless to stop it. One misunderstood gesture, one bitter or ableist staff person, any case worker who secretly refuses to believe that nonspeaking adults are competent, and they can take our loved ones away and we will never see them again.
This is a war for the personhood of disabled adults. This is happening all over our country. Recall the case of Abreham Zemedagegehu, a deaf U.S. Citizen jailed for 6 weeks for a crime he did not commit, mistreated and left voiceless because the police refused to provide him with the communication supports he needed. He was Black and homeless so he was therefore guilty?
While everyone with privilege is celebrating ADA's 25th anniversary, they also need to be fighting for our people. What benefit is privilege if it cannot save lives?
Beware the accusation of Munchausen by proxy: This accusation is at the center of another high profile case in which a young woman with mitochondrial disease was imprisoned in a Massachusetts hospital, denied treatment for 16 months, and the hospital and the CPS of Massachusetts is responsible for her health declining such that she is now confined to a wheelchair and may never recover her health completely. The story of Justina Pelletier is terrifying: http://www.foxnews.com/
The Munchausen by proxy parade of destroyed families and tragedies is endless. Jenny Lockley, the mother of an autistic young student, had her son's formal diagnosis rejected by a school that simply did not wish to provide him services and their insistence that she was "just trying to get attention" nearly destroyed her family and her life: http://www.dailymail.co.uk/news/article-2554867/The-schools-spy-Munchausen-Mums-Teachers-accuse-lying-childrens-autism-attention.html
Here is the story of Karen, and how she and her husband lost two children to the lie of Munchausen by proxy: http://www.theguardian.com/uk/2004/feb/01/children.health
Image of Sharisa typing with her father seated on on her left when she was featured in the groundbreaking documentary "Loving Lampposts." |
Regardless of degree of disability every disabled person has a right to self determination: the entire victory in the landmark case of Jenny Hatch, is that a disabled adult, regardless of degree of disability, has a legal right to decide where they want to live. http://www.washingtonpost.com/local/woman-with-down-syndrome-prevails-over-parents-in-guardianship-case/2013/08/02/4aec4692-fae3-11e2-9bde-7ddaa186b751_story.html
If you take away a person's wheelchair you've deprived them of their mobility. If you snatch away a person's certified ASL interpreter, you have devoiced them. If you take away a nonspeaking disabled person's AAC support you have devoiced them and taken away their ability to advocate for themselves. Removing a critical support from a disabled person is against the ADA and might even be a legal assault on their person.
I am waiting for a statement of outrage from more disability rights organizations on this. From the onset, I've been waiting for a proper petition, a form email and a list addresses to write to those in charge of adult services in Colorado. Sharisa needs her voice back. She needs her right to decide where she lives and how she lives back. Sharisa is one of the women who led the fight for the presumption of competence of nonspeaking autistic people. She doesn't deserve this degradation and isolation, nor this abandonment from the community she fought for.
All of this hoopla about the 25th anniversary of the Americans with Disabilities Act means zip if any human services entity can get away with devoicing, snatching guardianship, and obliterating all the self advocacy and self determination of a nonspeaking disabled adult. Is this the world we want for our children? I for one don't. This nightmare straight out of a Lemony Snicket novel needs to end.
Where is Sharisa Kochmeister?
Colorado: Give Sharisa her life back.
Autism Community. Fight for Sharisa. Write the Governor of Colorado, Human Services, anybody. Email Colorado law makers.
Fight. She fought for us. Now it is our turn.
UPDATE:
There is a new petition for Sharisa on change.org: http://tinyurl.com/pqzznul
Sharisa is in what is labeled in Colorado a "host home" facility now in an undisclosed location. To our knowledge she is still being denied any assistive technology communication supports. As soon as we have a postal address or email where we can sent letters or email to her I will post it here. She needs our words of support to tell her she's not alone. Sharisa life is very restricted and now and going from a free life to the this one must be traumatic for her. Others are also blogging about her crisis situation. I'll post those effortsin the reference list.
References:
Sharisa's story: http://www.denverpost.com/opinion/ci_28533686/meyer-an-outrageous-human-services-case-jefferson-county
The Loving Lampposts Documentary featuring her: http://lovinglamppostsmovie.com/
What is the Americans with Disabilities Act (ADA)? https://adata.org/learn-about-ada
What is tIn Olmstead v. L.C., 527 U.S. 581, 119 S.Ct. 2176 (1999) ("the Olmstead decision"),? http://www.ada.gov/olmstead/
On Denial of Communication Supports for the Disabled
New: Amy Sequeniza for the Autism Women's Network:
http://autismwomensnetwork.org/sharisa-joy-kochmeister-give-her-back-the-right-to-communcate/
Deaf couple denied interpreter fo birth of baby:
http://www.theguardian.com/society/2014/jan/19/deaf-couple-lack-interpreter-birth-university-college-hospital-london
Deaf Mom Sues for the Right to Have Sign Language Support in Delivery Room:
http://www.miamiherald.com/news/article1984639.html
On seizing guardianship of children and adults using the Munchausen by proxy accusation:
Justina Pelletier's Story : http://www.foxnews.com/politics/2014/06/12/massachusetts-dcf-files-motion-agreeing-justina-pelletier-should-be-returned-to/
Jenny Lockley's Story : http://www.dailymail.co.uk/news/article-2554867/The-schools-spy-Munchausen-Mums-Teachers-accuse-lying-childrens-autism-attention.html
On the Right of Neurodivergent individuals to self determination in deciding where they live:
Jenny Hatch's Story: http://www.washingtonpost.com/local/woman-with-down-syndrome-prevails-over-parents-in-guardianship-case/2013/08/02/4aec4692-fae3-11e2-9bde-7ddaa186b751_story.html
And here: http://www.washingtonpost.com/local/virginia-woman-with-down-syndrome-becomes-hero-to-the-disabled/2013/08/17/0da21766-062e-11e3-a07f-49ddc7417125_story.html
You probably already did this, but, if not, call your state protection and advocacy system now. Fixing this kind of thing, without charge to you or your friend, is their job. The lawyers there would be really interested to hear about this.
ReplyDeleteI forgot to include their url. Here it is: https://disabilitylawco.org/we-may-be-able-help-you
ReplyDeleteSeriously, if you have not already done this, the federal government set up and pays these people to deal with exactly this kind of thing. They will work free of charge, and they will put up a fight over someone getting disappeared.
Kerima - thank you for posting this important information. It is 10 PM here in Jerusalem so I hope I can post a more detailed comment tomorrow.
ReplyDeleteThis is horrible. I am not from the USA, but you have my support.
ReplyDeleteThank you Hana. We are trying to make this a very public story, It means a great deal when everyone cares.
DeleteThis is reprehensible. IS there no one who can force the state to defend themselves in this?
ReplyDeleteThe Colorado Developmental Disabilities Coalition and The Colorado Developmental Disabilities Council are fighting as are a great many activists. Our voices are not being heard.
DeleteThere is so much going on behind the scenes not just in Colorado but everywhere that it is overwhelming. I'll trying to post updates as soon as the dust clears a bit. THANK YOU ALL for sharing this and making Sharisa matter! Maybe this will result in things like this happening less. It is becoming rampant
DeleteSharing. Thank you Kerima as always for saying what must be heard. <3
ReplyDeleteThis is like the National Defense Authorization Act for neurodivergents...
ReplyDeleteTo the extent that you can PLEASE keep us posted on what is happening. I have always been aware that having a natural (if speech-therapized) voice is one of my most significant weapons/tools in the world. If I don't use it to help, that's wrong.
ReplyDeleteI put this out on Facebook today and only got 5 signatures, with only two shares. Frightening that this could be happening to someone like Sharisa, a progressive,under a progressive regime.
ReplyDeletehttps://www.change.org/p/the-un-committee-on-human-rights-we-demand-to-recognize-psychiatric-coercion-as-the-crime-against-humanity-and-on-this-basis-to-exclude-it-from-acceptable-in-the-human-community-measures?recruiter=352938876&utm_campaign=signature_receipt_fb_dialog&utm_medium=facebook&utm_source=share_petition
Kerima, I'm working on a post/memo regarding Colorado law and federal law in this matter. With your permission, I would like to cite this piece - may I do so, and if so, how would you like to be credited?
ReplyDeleteIf this helps Sharisa's cause feel free to cite it. Kerima Cevik, disability rights activist, mother of a nonspeaking autistic pre-teen.
DeleteI'm not sure I understand. Who took her and from where and why? It sounds horrific.
ReplyDeleteDo you think there is someone specific who could be pressured here? Tumblr is awake to this situation, but Tumblr has the attention span of a toddler who just stole her mom's latte. It would have to be done quickly.
ReplyDeleteSpecifics on who and why she was taken are in the Denver Post Op Ed and in the blogpost. After this was written, many disability rights organizations became aware of Sharisa's crisis and they are working together to help her. What concerned Tumblr members can do is follow AutCom, The Autism Society, ASAN, AWN, and other orgs who are coordinating online action and amplify their efforts at #FreeSharisa
ReplyDeleteHi Kerima, I work with a small group of people mobilizing radical activists in Jefferson County. Sharisa has our full support! Please let me know how we can help.
ReplyDeleteI also work with the Denver branch of the Icarus Project, a radical mental health network. We extend our support to Sharisa as well! We are a group that values neurodiversity, please let me know if you need any support from us or if you think it would be appropriate for us to issue or cosign any statements.
Thanks so much for the offer Kae. I will reach out to people and see what they are doing
DeleteI have an answer. Kae how can I reach you by email?
DeleteHello. Sorry. I've just found this story. I know it's years late. Is Sharisa out now? Is she safe? What happened.
ReplyDeleteI reached out to people in her home state. My understanding from them is she is now in an appropriate setting, has access to communication support, and is recovering from trauma but in good health. Her parents currently do not have guardianship of her.
DeleteI'm not sure if my last comment sent. What happened? Is she okay now? Is she out?
ReplyDeleteI had heard from someone who knew the case that the father had been abusive to her. To return her to him would have been a problem and dangerous to her. The question now is whether she is able to communicate, whether her communication skills were ever as they were shown with her father as her facilitator. This is always an issue when there is just a single facilitator. There should be multiple paths for those who are disabled to be able to communicate since it is entirely possible that a facilitator becomes a captor.
ReplyDelete