My husband's exhaustion has been going on for months. People have no concept of what it takes to keep our son safe and healthy. He has health concerns that are above and beyond being on the profound ray of the autism spectrum. We have cared for him without any respite since his birth, as any loving parent should. We have homeschooled him since the terrible day when his school in their own words 'lost him'. On days like today I worry about the toll that navigating this system of uncertain supports and services is taking on his father.
|Nuri doing brain surgery on my MacBook|
Eventually, when this week's hospital trips are over, when we can rest, I will hold a wake for my poor Macbook. It was a wonderful machine. I will not have another. But I have to move on and do the best I can.