Standing At The Intersection of Adolescence, Race, and Disability

Police badge, credit Wiki media commons

This post may wander a bit. Recent events have made me  very emotional, shocked and sad.

Our son is twelve.  His father, sister and I have spent a major part of his life trying to meet a single goal before his thirteenth birthday. We have been trying to ensure he is equipped to survive his adolescence without being killed in a catastrophic encounter with police. He has been fortunate, and so far, safe. But recent events make it clear that we must act in some way to change the way things are or chances are, he may not be safe in the future.

When I realized that roughly 70% of people with disabilities encountered law enforcement more than once in their lifetimes, learned how many were victims of abuse and crime, and how many disabled males of color died in such encounters, I went to Annapolis to ask for an autism training bill for first responders. I later came to the realization that the training concept is inherently flawed and limited in its success.  For police officers, in particular, training them in awareness of autism and how someone autistic reacts to sirens, strobing lights, and people shouting at them wasn't the solution to the problem of keeping our son and his nonspeaking peers from accidentally being shot or wrongfully arrested in a police encounter.  Particularly for autistic and other neurodivergent males of color, police training in other states did not deter or reduce catastrophic encounters. Understand that  Freddie Gray was diagnosed with disabilities resulting from lifetime exposure to lead paint poisoning common to the low-income housing in West Baltimore. Freddie Gray was neurodivergent. His death is not counted as a Black disabled catastrophic encounter death but it should be.

 I have recently realized I must accept the idea that just about the only way to ensure our nonspeaking autistic son isn't harmed is instilling in him that he must avoid the police as much as possible.

The only legislative goal that will reduce catastrophic encounters with law enforcement for neurodivergent males in general and neurodivergent Black and brown males, in particular, is legislation aimed at not placing them in the path of police, to begin with.

I never thought I would have to consider how to teach my son to avoid police.  But there is no denying that recent events demonstrate race relations in this area of modern society have reversed 50 years, and we are now living in a dangerously polarized country. So here we are with our sweet son, standing at this intersection of racism, ableism, and disability. We are looking for breadcrumbs we can leave to aid him in preserving his own life  and the thought is frightening. So frightening that I can say the only thing that frightens me more is the rising number of autistic school children being arrested for school infractions and forced into the criminal justice system .

How do we teach him that the safest way to deal with law enforcement is to avoid engaging them at all?  Even if he needs help. Even if they seem kind and appear to understand he is unable to speak. Despite what he's been presented by well-meaning people who don't know what it means to be a Black man in America. Because if he meets a good cop one day, he may meet the one that hates him the next, and that could end his life. Too many others have died because they could not speak and were not provided with the means to respond when police ordered  them to do so.

The bullet-riddled windshield of Timothy Russell's car shows where some of the 137 bullets police fired at the car landed. (credit: Marvin Fong/The Plain Dealer)

One of my main goals for the remainder of my life is lowering the odds that my only son will die  by pushing our community to rethink what the role of law enforcement should be in our lives and to support efforts to remove law enforcement from inappropriate roles in the lives of autism families so we are able to  avoid police engagement as much as humanly possible. I am tired of watching our people die.

We are traumatized and tired of being helpless witnesses to the lives destroyed and lost in such encounters.  Freddie Gray,  Matthew Ajibade, Tario Anderson, Rekia Boyd, Tamir Rice, Aiyana Stanley-Jones. It is the list of the dead and injured that just keeps getting longer by the month while the criminal justice system keeps failing them and our entire race, first by allowing them to come to harm, second by allowing those who harmed them to not be made responsible for their actions, and third, by  blaming the victims in order to absolve the perpetrators. I continue to repeat that even someone who is suspected of committing a crime has the right to be safely arrested and tried by a jury of his peers. Police are never supposed to be executioners.

Knowing police officers who sully the uniform will not be held accountable for any wrongdoing, regardless of how much evidence of their guilt is apparent is soul destroying. We've been swallowing this bitter bill for my entire life. It is a spiritual struggle  to continue to defiantly declare one's right to exist and human right to humane treatment knowing this is true. Here is one of many examples of justice denied.

Cleveland police officer Michael Brelo mounted a car that 5 other police officers had riddled with bullets after "confusing the car backfiring with a gunshot"  and continued shooting down into the windshield of said car until the two already wounded victims, Malissa Williams and Timothy Russell, where dead. Officer Brelo was acquitted of any wrongdoing. 137 bullets were not, in a judge's opinion, excessive use of force.  If you believe that compliance of a traffic stop would have changed the conclusion of this encounter, then you are deceiving yourselves. If the moment the car backfired, the knee-jerk reaction was to shoot with impunity,  this act was driven by the presumption that Black suspects are dangerous criminals who should be shot. That is racial profiling. Which makes this a hate crime. This was never going to be an arrest. It was an execution.  Understand why we fear for our son. If you don't understand and don't act to help everyone fighting to change this deadly sequence of events, more will die.

This week the Supreme Court ruled in favor of San Francisco in the case of City and County of San Francisco v. Sheehan, overturning the decisions of all lower courts and placing all disabled people at risk. Specifically, they ruled that police who forcibly enter the premises and shoot a mental health patient have qualified immunity from litigation. This sets a legal precedent that weakens ADA protections despite the court's attempt to bypass the impact on ADA issue and enables further cases of excessive use of force when dealing with neurodivergent people in general and mental health consumers in particular.

I have already pointed out  here  that both Paul Childs and Stephon Watts were shot dead by police officers who had autism training, knew them, and had even helped them in the past. A police officer being familiar with your son's autism, knowing your son doesn't use verbal speech, being trained to approach and manage neurodivergent people doesn't protect them from being shot by those very police officers later on.

Jurors in the trial of the New Orleans police officers who shot multiple
victims including the Madison brothers inspecting Danziger bridge. Credit
Michael DeMocker NOLA Media

If I seem pessimistic about what is happening it is because even in cases where video evidence of wrongdoing supports witness accounts,  and even in cases where convictions are handed down, inevitably, as in the Supreme Court decision in San Francisco v Sheehan, justice eludes the victim. The conviction of the New Orleans police officers who shot among others 40-year-old autistic Ronald Madison and his brother Lonnie, who was trying to walk him over the bridge and out of New Orleans after Katrina, was overturned and they have now been granted a new trial. We all know these men will never see prison. Ronald Madison was a gentle person, loved by his family and neighbors. His brother refused to leave New Orleans without him and remained behind to help lead Ronald out after the storm because he didn't understand why he had to leave his home. It seems now that no one will ever answer for the innocent lives taken that day either.

If you ask my opinion of possible solutions to keep our autistic offspring of color safe by avoiding unnecessary engagement with law enforcement, I'll respond that I have a list. Here is part of that list

1. Retrain 911 operators to clearly distinguish the difference between a mental health crisis call and a law enforcement call. Do NOT use police officers as mental health support staff to transport MH consumers in crisis to help facilities. 

2. Train parents to properly request an ambulance and mental health crisis support; train loved ones and caregivers not to call the police unless a weapon is involved.

3. Remove the use of police and school resource officers (SROs) from the chain of school discipline and prohibit the profiling of disabled K12 students through files maintained by SROs, as they are neither qualified psychologists or psychiatrists.

4. Block school administration from calling the police to arrest students for school-related infractions and fine them if they do so. This holds them accountable for not providing staffing support for disabled students who require it.

5. Ensure that any incident involving the arrest of disabled students is automatically reviewed by that state's department of education's office of civil rights to assess the degree of violation of the student's civil rights and ensure the student is provided with properly trained classroom  support staff per IDEA .

6.  Establish grassroots mental health crisis support teams and  peer-run respite and crisis centers for MH consumers. This will increase respite for MH consumers and families, averting  crises where police might be called to homes or schools for interventions outside the scope of law enforcement                                                                                                                                                                                           .

I must continue my efforts to find a way to explain this all to my son and together we must ensure that even after we, his parents, are gone he knows how to survive as a nonspeaking  neurodivergent male of color in this increasingly corrosive world of hate.

God help us both.
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References:
Why Autism Training For Law Enforcement Does Not Work
http://theautismwars.blogspot.com/2014/08/why-autism-training-for-law-enforcement.html
What We Lose When Police Blame Victims For Their Own Deaths
 http://www.huffingtonpost.com/2015/05/15/police-shootings-victim-blaming_n_7284792.html
Blow to ADA of Supreme Court Decision in San Francisco v Sheehan
http://www.scotusblog.com/case-files/cases/city-and-county-of-san-francisco-california-v-sheehan/
Cleveland officer not guilty over deaths of two people shot at 137 times by police
https://www.theguardian.com/us-news/2015/may/23/cleveland-officer-not-guilty-shot-137-times-police
Reversal of Danziger Bridge convictions a 'bitter pill' for Hurricane Katrina survivors
http://www.nola.com/crime/index.ssf/2013/09/reversal_of_danziger_bridge_co.html

The Only Things I'm Positive About #AutismPositivity2015

My husband and I took a moment to watch our son asleep this morning. He was wrapped in a tangle of sheets, unwilling to release his firm grip on a tiny piece of plastic that looked to be a lego piece. His handsome face was peacefully inhaling and exhaling deeply and not quite snoring. His arm was up in a position that made it clear he did not so much drift off to sleep; rather, his body won the battle to rest and recuperate against his iron will to keep moving. Ever darkening peach fuzz above his lip does not detract from the innocence of our son's face in sleep. These are the moments when I catch my breath and wonder how I was part of producing such a lovely human being. I have a difficult time understanding how people fail to see him as we do.

What a hellish year its been so far. So much we are trying to shield him from, so much hate, harm and pain. Surrounded by all the danger and uncertainty I was so sure our nation would outgrow, I can say the only things I feel positive about are that we love him, that autism is not an anthropomorphic demon "with" him, dogging his steps, waiting to trip him up, and that this will of iron he has had since infancy is actually becoming steel, forged in the  fire of these horrific adversities life keeps throwing in our paths. I'm positive I belong beside him, guarding his flank against the racist, ableist, ignorant, hateful and well intentioned enemies that stand between him and his rightful place in this world. I am positive he is not a burden. I am positive of his right to be part of any community he lives in.

Mustafa Bey

One of my favorite pictures of him reminds me he is growing up. People say he looks much older than 12. My giant younger brother was about this size at 12. Mu holds a resemblance to his paternal grandfather, a man who was tall and commanding, a maritime engineer. All those things about him
that intimidate the uneducated have never bothered me. I'm not sure why that is. I call him my Pan-Turkish American Pehlivan. I sing songs to him about John Henry and Kiziroğlu Mustafa Bey and tell him that those who were like him never gave up; they commanded respect and he should do the same. My concern continues to be that he should be allowed to participate in life as anyone would. Autism shouldn't be something he's "with", like a vaudeville ventriloquist's dummy in a suitcase that is carried with him, attached to an arm. Our son's neurology is  a descriptor of who he is like any other adjective we use to try and define him.

 He is American/Nonspeaking/Turkish/Hispanic/Black/Indigenous/Autistic/Obstinate/Charming. He is all that and yet more than the sum of all. He defies description.  He reflects and refracts each aspect of himself. That is who his is. Sometimes I see him pounding down the stairs they said he'd never climb without support or laughing, jumping wildly in the sunlight and laugh with the sheer joy he taught me to express fully.  I pity those who don't see him as I do. Perhaps it is the same as gazing too long at the sun. Maybe they should learn to not look directly at him just as he, in deference to not seeing their souls' secrets bared, does not look into their eyes. Realities can be overwhelming.

The hardest thing about being Mustafa's mother is people around me projecting their own ableism on me and telling me how I should feel about him. I shouldn't be happy because they wouldn't be. I must accept that he is an unacceptably divergent son, because they cannot accept him. I must be near some breaking point because were they in my position they would be. They have no idea. They just assume they do. Their forcibly imposed conclusions are the most difficult thing to fight each day. The time consumed countering all that insistent negativity about nonspeaking autism could be better used just getting to know my budding teenaged son.

When a word or short sentence bubbles its way to his lips it is a sweet jewel because verbal speech is nearly impossible for him. I know. I've seen the scans of his brain. His voice, a deeper richer combination of a voice I inherited from my mother and her ancestors, the voice our daughter has in a slightly higher pitch, is heartbreakingly beautiful. If Mustafa ever sings it will be something to hear. But that doesn't matter to me now. I just want him to be given the respect he deserves. He has inherited something I did not wish to give my children; I don't mean an autism gene. I mean a legacy of being a marginalized human being in a negative world. Acceptance? Acceptance is not enough.

I am opening the eyes of my heart and telling the world, here is my beautiful neurodivergent son, my most precious gift to you.  You cannot simply accept him. Respect him. Allow him to be an equal member of society. Cease killing his peers and silencing them. As for loving him?

 We have all love he needs.